Category: medical
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POTS Heat Survival Hacks
Survived Creation Fest, which is our summer adventure 1 of 3. Two more to go! Here are my hacks to surviving a 5 day outdoor music festival with lots of walking, heat, humidity, and camping…or really even just walking from your front door to your car (let’s be real). #1 Buy. Instant. Ice. Packs. Seriously,…
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Here’s the thing..
Here’s the thing about chronic pain, at least for me…. 24/7 I am constantly in some level of pain. All the time. However, there are flare ups, there are days it is significantly worse, days where it’s not as bad, days where the pain is targeted in different locations in my body, and days where…
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Living with POTS, etc.
I wish I could love summer. I grieve the things I can no longer do because they are now a recipe for disaster for my body. I miss being able to hike and enjoy the great outdoors. Although heat and exercise has always been a trigger for my EDS and POTS, it has never been…
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Life with Chronic Pain
I am in pain every single day. Some days are worse than others, some days I only notice it if I decide to stand up for more than a few minutes. But every day to some degree I’m in constant pain. I’ve had doctors say they don’t believe me, tell me I’m just looking for…
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Forgiveness
Currently going through Lysa Terkeurst’s book Forgiving What You Can’t Forget with my mentor. I am loving this book for so many reasons and highly recommend the book and the journal if you struggle with forgiveness or are going through the process of forgiveness. This week I was challenged with really looking inward and finding…
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We’re All in This Together
Our current situation is rather unique, as in we are all dealing with this global pandemic together in one way or another. Instead of bickering and clinging to our own opinions we should all be working together to seek truth and comfort. As Christians we are not called to be gullible and easily fooled. We…
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PSA
Honestly….either people are completely overreacting or not reacting to this pandemic as seriously as they should be. There is very little in between. Stop stealing, buying, and hoarding N95 masks. Hospital workers desperately need them. PPE supplies are dangerously low and are needed now more than ever. I am currently laid off, I work as…
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Let’s Dance!
I was in the waiting room at therapy with my friend, and a boy, maybe 16 or 17, came up to me, sat as close as he possibly could, and grabbed my hand. Which is a totally normal occurence in my line of work. He asked what my name was, and after I told him,…
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Prayers Please
I’ve struggled through some frustrating medical problems most of my life. Not nearly as much as my brother has, but mine have seemed to become more severe as I’ve gotten older. I am still dealing with the aftermath of my skin disease, and auto-immune disease triggered by stress that only about 50 people have ever…
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You just have to laugh…
What a week it has been. On Sunday evening I had a heart episode while in the hot springs in Ouray, Colorado. Since then it has been an exhausting week of going to urgent care in Albuquerque, New Mexico on Monday, being advised not to fly, going on two flights traveling back to Pennsylvania on…
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Painful Beloved 