Tag: ehlersdanlos
-
POTS Heat Survival Hacks
Survived Creation Fest, which is our summer adventure 1 of 3. Two more to go! Here are my hacks to surviving a 5 day outdoor music festival with lots of walking, heat, humidity, and camping…or really even just walking from your front door to your car (let’s be real). #1 Buy. Instant. Ice. Packs. Seriously,…
Written by
·
-
Living with POTS, etc.
I wish I could love summer. I grieve the things I can no longer do because they are now a recipe for disaster for my body. I miss being able to hike and enjoy the great outdoors. Although heat and exercise has always been a trigger for my EDS and POTS, it has never been…
Written by
·
-
Life with Chronic Pain
I am in pain every single day. Some days are worse than others, some days I only notice it if I decide to stand up for more than a few minutes. But every day to some degree I’m in constant pain. I’ve had doctors say they don’t believe me, tell me I’m just looking for…
Written by
·
Painful Beloved 